Aubrey Updates

So if you've been following my blogs you know we've had a CT Scan on Thursday for Aubrey to check to see if her sagittal suture was closed on her skull. The nurses on Thursday at Vanderbilt Children's were absolutely amazing. They told me it could be 48 hours but we got the CT Scan at 11 on Thursday, Dr. Joseph called me Friday by 12:30 with results. I was working and Patrick was at work...I asked her if I could call her right back with Patrick on the phone, I had a feeling I couldn't hear the results alone. We called right back and Dr. Joseph let us know that Aubrey's Anterior Suture and Sagittal Suture are indeed closed. Good news is her brain looks great and her facial features look great. The only issues are these two things. I asked her several questions but she was the first to admit she's not a specialist on this and to save my questions for Dr. Kelly (the Pediatric Plastic Surgeon). She said she's had a couple of patients with this diagnosis and they all did really well.

We meet with Dr. Kelly for our surgery consult on Wednesday at 11. We will learn then what exactly the surgery will entail and be able to ask questions and will be able to solidify a surgery date. From everything I've read and heard regardless of which suture it is they cut the same way - ear to ear like a headband. I've been put in touch with Mothers who's children has had this surgery (GODSEND) and been able to see pictures a few months after and you can hardly tell. So now we prepare for surgery.

Saturday we got Aubrey's 9 month pictures done (needed to do them anyways) but wanted some professional pics before they shave her head. YES THEY WILL SHAVE ALL HER PRETTY HAIR OFF. Bright side is that it'll grow back thicker and to be honest she'll probably still have more hair in 2 months than most girls her age. Next weekend we are planning to take her and have her first haircut. No way am I letting her first haircut be by a surgeon shaving her head. We'll just cut a bit off and the rest will come off at the surgery. We have a ton of hairbows and will be utilizing headbands until her hair grows back. If we get a helmet we'll get bigger bows for it.






Our family has felt an amazing outpouring of love from everyone that we know. We have deep faith that God has put us in the struggle for a reason. Not sure what it is but I really do believe it. Maybe so that our struggles can be a witness for someone else, so that we can be drawn closer to God...something. If I didn't believe this mornings sermon at the Journey Church solidified that for me. I literally cried the entire time.

We are absolutely in love with our child but we know that ultimately she is God's and he will use her for his will.

For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.
—2 Corinthians 12:10

Yet if anyone suffers as a Christian, let him not be ashamed, but let him glorify God in that name.
—1 Peter 4:12-14, 16

Stay tuned for more updates. We'll probably update again on Wednesday with surgery date. Thanks again for all the thoughts and prayers.